Desperate mum's plea as her young daughter is diagnosed with extremely rare disease that has 'put a timeline on her life'

A young girl faces an uncertain future after she was diagnosed with an extremely rare and debilitating medical condition which has 'put a timeline on her life'.

Mar 9, 2025 - 13:32
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Desperate mum's plea as her young daughter is diagnosed with extremely rare disease that has 'put a timeline on her life'
A young girl faces an uncertain future after she was diagnosed with an extremely rare and debilitating medical condition which has 'put a timeline on her life'.